« Hot arachnid-on-arachnid action | Main | What difference does a letter make? »
25 June 2007
Intimations of mortality
It has been over a year now since I last posted. In some ways, the past 18 months have been difficult ones, and indeed I had thought they are what I would be writing about now. But I've heard some bad news now that puts my own complaints into perspective.
My uncle has been diagnosed with ALS, the motor neurone ailment known as 'Lou Gehrig's Disease' from the famous baseball player who succumbed to it. My uncle is in his mid 60s. He will now gradually lose control of his muscles and then, in three or four years, he will die, probably of asphyxia. (The long progression of the disease in Stephen Hawking, who was diagnosed when he began his postgraduate studies and is now himself in his mid 60s, seems to be highly unusual.)
Though we have not been close in recent years (no falling out -- we simply see each other very rarely), I adored my uncle when I was a child. He is a jovial man, enormously fun-loving. Throughout his working life he took one astounding risk after another, yet always landed on his feet. (I am myself highly risk-averse and security-conscious; hence, perhaps, my admiration for my uncle, so very different.)
My uncle is also deeply religious. I am not quite an atheist, but I can share neither the form nor the intensity of his belief. Few of us would begrudge a dying man the comfort his religion provides, even where we think the religion false. But my uncle's religiously-driven view of his condition seems a bit more nuanced than the usual 'it's all part of God's plan' stuff one often hears. He is not despairing in the least. Rather, he thinks the knowledge that he will decline and, in the fairly near future, die is a 'gift' because it spurs him to make the most of his remaining time. He now knows that he has to focus on his wife and family, on the people and things and ideas he finds most worthwhile. Another man, his attention unfocussed by a terminal diagnosis, might give all these short shrift and fritter away the next three years making a lot of money or what have you, only to walk under a bus.
My uncle's attitude, it seems to me, is as healthy as it could be under the circumstances. Now, if you spend time at Pharyngula (and you should), you'll have noted that one of the ideas PZ Myers and many of his commenters often emphasise is that one doesn't need religion to be moral, or altruistic, or serene in the face of death. And they're undoubtedly right. But, although I do not agree with my uncle's religion, it is his religion from which his equanimity springs. This element of religion, at least, is not one that I can damn as false or evil.
Posted by Mrs Tilton at 03:29 PM | Permalink
Comments
Welcome back, even if it must be with such sad news.
Posted by: acb at 25 Jun 2007 17:33:02
Welcome back, yes.
One of my uncles had ALS. He was stricken in the early 1950s. In about 1959 the physicians thought he was near the end. But then, one day, he woke up feeling not too bad. He got up, fixed breakfast, and went on about life. He lived another 30 years -- slowed, but not getting worse. He finally died in his 90s, from complications of Alzheimer's Disease.
The long progression form, the arrested form -- what causes that?
What a rich area for research. Is anyone doing it?
Most ALS victims have much less time. It is sad that it strikes so many people with very active intellectual lives (does the disease favor the highly intelligent? It sure seems that way).
Spend time with your uncle. You may also want to read Tuesdays With Morrie, which is just a wonderful book about a wonderful man, but also includes some of the medical and counseling information someone close to an ALS victim can use.
Keep us informed, please -- just in the off-chance that informed prayer or concern can help.
Posted by: Ed Darrell at 29 Jun 2007 04:39:31
Ed, thanks for dropping by. I don't share your belief that intercessory prayer has any effect (to remedy the illness, that is; as a token of solidarity, by contrast, it might do the beneficiary of the prayer a world of good). But I am very grateful for the thought. And, however long the odds against it must be, I will hope my uncle's illness is one of those very rare instances that takes a long time to progress. I'm glad that's how things worked out in your own uncle's case.
Posted by: Mrs Tilton at 29 Jun 2007 23:50:02
I am an atheist, but that element of religion I can live with.
I don't remember who said this, but I like it:
"religion should be a stick to lean on,
not a stick to hit other people with."
I wis more people coul live by that.
Posted by: robd at 29 Jun 2007 23:52:33





